Swift Boating Stem Cells
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Fri Aug 18, 2006 at 02:01:26 AM EST
Focus on the Family launched one of the most astonishing disinformation campaigns in the nation in Missouri in August.  The subject was stem cell research, but the style was pure Swift Boat Veterans. Focus on the Family covertly distributed 90,000 brochures, stealing feminists' rhethoric and then using those feminists to argue against stem cell research.  It's a switcheroo.  Here's the story. Missouri has before it a proposal to pass a constitutional amendment to permit stem cell research.  The primary proponent of the measure is the Missouri Coalition for Lifesaving Cures , largely supported by the Stowers Institute for Medical Research in Kansas City.  The group had to collect enough signatures to put the measure on the ballot.  On August 8, Missouri Secretary of State Robin Carnahan certified that the stem cell measure had met the mark.  Missourians will vote on the measure in November.

The most remarkable part of the signature campaign, however, were the sneak attack tactics of Focus on the Family.  Apparently they know most people don't agree that a blastocyst is the same as a human being, and think, unlike Focus on the Family, that it is worthwhile to permit research with stem cells to find lifesaving cures for diseases.

So rather than argue their particular religious views - so dogmatic that most people don't agree -- against stem cells, Focus on the Family Swift Boated.  First they conflated stem cell research with cloning.  But a stem cell in a lab will never be anything other than a stem cell in a lab unless it is implanted in a womb.  And a stem cell being used for research isn't being implanted in a womb.

Then the Focus on the Family folks went one step further.  They printed slick brochures appropriating language from the feminist movement - which they heartily oppose.  What did they title their brochures anti-stem cell research brochures?: "Women's voices against cloning."  

Matt Franck in the St. Louis Post Dispatch .
got the skinny from Focus on the Family:

"There may be people who are morally neutral on the issue of cloning of
embryos, but would have an issue with the exploitation of women," said
Carrie Gordon Earll, a bioethicist for Focus on the Family, a national
religious and policy group.

Earll prepared a brochure for Focus on the Family titled "Women's voices
against cloning," recently mailed to more than 90,000 voters. Thousands
more copies of the brochure are being handed out across the state by
activists.

Judy Norsigian, the head of the highly regarded "Our Bodies Ourselves," a feminist health care organization and publisher in Boston, is one of those quoted.  

... Norsigian said she is frustrated that readers of the brochure
might infer that she is against all forms of stem cell research. In fact,
she supports research using eggs left over by fertilization clinics.

Women's health care groups support the Missouri research proposal, including the Association of Reproductive Health Professionals and the Society for Women's Health Research and the National Women's Poltical Caucus of St. Louis.

But you wouldn't know that from the 16-pages of glossed-up language distributed by Focus on the Family.  The brochure uses language like "scientific violence" and insists: "women's bodies are not biological objects for scientific use."

Emily Galpern of the Center for Genetics and Society reviewed the matieral.

"One of our concerns is that conservative folks are co-opting feminist
language to suit their cause," said Galpern, of the Center for Genetics and
Society, based in California.

The brochure tries to argue that egg extraction is dangerous for women, pointing to complications from one method, somatic cell nuclear transfer or SCNT.  But most stem cells used in research are leftovers from babymaking couples who use in vitro fertilization, and will languish in a lab or be tossed out (aside from the rare, but highly funded religious right notion of 'embryo adoption' -- another sham.)  Missouri ballot supporters point out that the amendment would ban the sale of eggs for research and require informed consent of donors.  

Women's organizations quoted in the brochure tell ThinkProgress that Focus on the Family has misrepresented their positions and that they actually oppose the organization's aims to ban stem cell research.

The attempt to scare women into thinking that they will suffer from positive public policy isn't a new trick.  Religious conservatives use it when it suits them.  In the 1970s, Phyllis Schafly of the ultra-conservative Eagle Forum, argued that women would be harmed by an Equal Rights Amendment to the U.S. Constitution - they would have to share bathrooms with men and lose job protections, she claimed.  The measure, as we know, lost.  

And opponents to abortion, such as the fakely-named "Feminists for Life" currently argue that abortion hurts women, and so should be outlawed, but they fail to explain why women can't make decisions for themselves, or should be made criminals for seeking reproductive health care or be forced to go underground.

But the latest Swift swipe by the anti-feminists of Focus on the Family -- the ones who oppose abortion and contraception and think women should be homemakers who are subordinate to their husbands -- might rise to a height of absurdity that even an average Joe can see through.




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As a an activist for both embryonic stem cell and SCNT research, I have found Judy Norsigian to be pushing a bigger agenda than opposing SCNT. She is typical of the Nader neo-luddites who happen to use much of the same fringe arguments as Straussians such as Leon Kass, the man who sees "beauty in the finitude of life" (try explaining that concept to the parents of child dying of cancer). Norsigian and others such as Claire Nader always rant about "big bio," when patients such as myself just want to get a better quality of life (it is a sad day when some on the Left adopt arguments made by neoconservatives).

Norsigian is correct that egg harvesting can be abused, but she fails to admit that such abuse is addressed in pending legislation such as the US Senate bill sponsored by Ted Kennedy, Tom Harkin. Arlen Specter, Diane Fienstien and rrin Hatch.

In short, Judy Norsigian is helping the Religious Right on this one.

by Frank Cocozzelli on Fri Aug 18, 2006 at 09:20:15 AM EST

I happen to agree in part with Norsegian, in that one can anticipate the likelihood of paid egg harvesting done on poor women (likely women of color) for the purposes of ES and SCNT research and treatment, just as there has been bidding on young tall white blonde high-IQ Ivy League women's eggs for the purposes of assisted reproduction. Typically, any complications in these paid relationships are not covered by the harvesting organization, and while the Ivy League student probably has health coverage, the poor woman probably lacks coverage. Admittedly, complications are rare (anesthesia-related, possible slight increased risk of ovarian cancer in later life, thromboses, etc), but since a surgical procedure is used to retrieve eggs, I would prefer to see such egg-providing women fully consented and not unduly coerced by amounts of money which seem large to them but chickenfeed to most people, and which won't cover complications.

Would people donate eggs? Possibly, women did so in Korea, out of patriotism and humanitarian reasons - too bad that particular Korean scientific "star" turned out to be fraudulent.

There certainly are other views on the matter of substantial pay for egg donation - some saying that a woman ought to be able to profit from her own body. Regulations need to be in place, in any case, for the protection of both provider and future patient. The history of paid blood provision is that the providers often tried to donate too often to rebuild blood cell level, and often lied about health status, etc.  Egg donation seems to be intermediate in risk between (regulated) blood donation and sperm donation, and living-donor kidney donation. I do think that, if the supply of donated embryos from assisted reproduction leftovers is insufficient, then we need to think through what protections are needed.

BTW, re: beauty of finitude of life. It isn't beautiful to us as individuals, but without death, there would be no reason/space to reproduce, and no evolution. Mortality would seem to be beneficial to the biomass as a whole.

by NancyP on Fri Aug 18, 2006 at 12:22:20 PM EST
[ Parent ]

I agree with Norsigian that the abuse of egg donation is a potential problem, but she refuses to recognize that the pro-SCNT members of the US Senate have recognized this issue and have proposed legislation that prevents such abuse. It is precisely why SCNT research should be legal, federally funded and strictly regulated.

As for "the beauty of the finitude of life" argument, of course it should be made not on an individual basis. What I find disturbing is that anyone would use it as an argument against SCNT or stem cell research (as both Bill McKibben and Leon Kass have done). Those of us whose bodies are slowing breaking down ahead of our time still see no such beauty.  We do not want this research to live forever, but for a better quality of life while on Earth. To bring in the issue of eternal life is nothing more than a red herring.

by Frank Cocozzelli on Fri Aug 18, 2006 at 12:45:25 PM EST
[ Parent ]



The point of my post is about the utter inappropriateness of the propaganda campaign against stem cells by Focus on the Family.  

Focus on the Family is pretending to be on the side of women as a subterfuge to masking its anti-woman agenda. Focus on the Family is completely opposed stem cell research, no matter how the stem cells come about.  Focus on the Family is focused on its theocratic view of the ways things should be.

That's how Focus on the Family is acting like the Swift Boat Veterans. They Swifties pretended to be on the side of vets as a subterfuge to masking the true agenda -- sneak attacks to defeat John Kerry.

Judy Norsigian is beside the point in this propaganda battle.  Focus on the Family has appropriated her words and twisted them.

As for what Norsigian believes, in testimony before Congress on March 7, 2006, she stated "We fully support ESC (embryonic stem cell) research that utilizes otherwise-discarded embryos from IVF clinics."   Unlike Focus on the Family, she is not opposed to stem cell research.  Unlike Focus on the Family, she does not hold a theocratic anti-research position.  She does express concerns about potential exploitation if stem cells are harvested under fraudulent circumstances, without full knowledge of the risks. But research proceeds quite handily with IVF stem cells. Norsigian has a cautious approach - it is not an oppositional approach, not an anit-approach.

It is misleading for Focus on the Family to pretend that it agrees with her, or that she agrees with them.

 

by cyncooper on Fri Aug 18, 2006 at 09:57:44 PM EST
[ Parent ]

 Cyn, I've had exchanges with Norsigian a few years ago when the SCNT debate initially heated up. She made it quite clear to me that she wanted a moratoreum on SCNT research until the egg donation question is settled. I, along with most patient advocates believe in tight regulation. I am a liberal Democrat, not a luddite Green (and no, I'm not slandering Greens. I have great respect for many of them, especially David Cobb. I do however, have no use for the Nader true believers); I believe in government's ability to properly regulate against potential abuse. To pursue Norsigian's and Claire Nader's path could mean a death sentence for me and others. In her E-mail exchanges she went on and on about "big bio." Well sometimes "big bio" with all its problems sometimes cures people of diseases. Furthermore, in dealing with many of the folks in the MissouriCures movement, much of the ongoing SCNT research is being driven not by "big bio," but by wealthy famlies with children who have ALS or juvenile diabetes.

Finally, Cyn I did challenge Norsigian on the Religious Right taking advantage of what she was advocating. In one E-mail I told her she was playing with fire by getting in bed with folks like Bill Donohue and other Religious Right opponents of the research.  She basically blew me off. So Ms. Norsigian and others in the extreme-Nader camp know full well that the Religious Right is taking them out of context on this issue. Folks such as Bill McKibben, Claire Nader and Judy Norsigian are not as much concerned with change with improvement, but with abstract, pyric victories. I often find them just as smug and self-righteous as many on the Religious Right.

by Frank Cocozzelli on Sun Aug 20, 2006 at 10:49:48 AM EST
[ Parent ]

Frank, I think we may have to agree to disagree on this.

I think Judy Norsigian is raising questions about the best ethical approach to research. She is not 'in bed' with the religious right and she does not oppose all stem cell research, as they do. She is not opposed to the Missouri Cures group.

I think it does a disservice to her -- and, in a way, to all of us -- to cast her as being in collusion with the Religious Right, when, in fact, she is being used by them to further a disingenuous propaganda campaign.

Norsigian' questions about the right ethical approach to research is a serious subject.  Let me acknowledge that there is a natural tension between people and researchers who want speedy results, and regulations that slow them down or want to proceed in a more cautious manner.

The details of research ethics probably are not a topic for this forum. But, in this instance, stem cell research could proceed quite readily if Norsigian's proposals were followed. Indeed, Missouri's proposal, it seems, WILL follow her suggestions. Focus on the Family is lying to imply that she stands in opposition.

There are probably points on which we all can say that, as members of society, we have similar views to the Religious Right. That does not mean that we join with their cause or their movement, or even support it in an indirect fashion. Or that it would be accurate for the Religious Right to tout that propaganda.  (I, for example, oppose murder of human beings; the religious right does, too. But we may disagree on the details: for example, our determination of when life begins or whether killing in war constitutes murder.)

I don't believe it's appropriate to link Norsigian to the Religious Right for expressing well-considered ethical questions that are in opposition to their overall goals and have nothing to do with their interests.  

by cyncooper on Mon Aug 21, 2006 at 01:21:53 PM EST
[ Parent ]

Cyn perhaps I wasn't as clear as I should have been. I am fully aware that Norsigian is not opposed to embryonic stem cell research, but when we communicated several years ago she was clearly hostile to SCNT research; something which may ultimately hold the key to solving the problem of immune system rejection caused by both adult and non-SCNT derived embryonic stem cells.

Maybe she has altered her postition since we last communicated, but when we did she used much of the same opposition language employed by the Jeremy Rifkin/neo-luddite camp. Furthermore at that time she did not seem too concerned that the Religious Right was picking up on and using her call for a moratoreum on SCNT research.

by Frank Cocozzelli on Mon Aug 21, 2006 at 04:43:46 PM EST
[ Parent ]

Amendment 2 does allow for SCNT research  (aka therapeutic cloning), but not reproductive cloning. I believe Norsigian still wants a moratoreum on SCNT research instead of tightly regulating it.

by Frank Cocozzelli on Mon Aug 21, 2006 at 09:04:52 PM EST
[ Parent ]




EVERYTHING FOTF does is inappropriate, IMHO. Truth means nothing to them, they are a partisan organization uninterested in any inconvenient details that may contradict or complicate their agenda.

I haven't picked over the details of the federal law, but if the protections in re egg donors are sufficient, then I have no problem with donation for SCNT. Those donors may be relatively few, once it has been sufficiently explained that the donation is not going to cure a specific person at this time, but there will be some donors.

by NancyP on Mon Aug 21, 2006 at 03:36:41 PM EST
[ Parent ]


For the record, the proposal to permit stem cell research in Missouri was supported by voters at the ballot box in the November 2006 election.  

Opponents to stem cell research lost.

The St. Louis Business Journal reported on Novmeber 8 Mo. Coalition for Lifesaving Cures claims victory on stem cell amendment :


The Missouri Coalition for Lifesaving Cures declared a win Tuesday for its Missouri Stem Cell Research and Cures Initiative, with 98 percent of the precincts reporting.

The constitutional amendment prevents state lawmakers from banning federally authorized embryonic stem cell research and treatments.

"With the close of this election, it is now time to come together and to find common ground in fighting disease," Donn Rubin, chairman of the Coalition, said in a statement. "Building on a history of medical breakthroughs and discoveries, stem cell research presents us with tremendous possibilities, and we are now assured Missouri will be a big part of the quest for new treatments and cures. And that when treatments and cures are found, the patients in our state will benefit."

According to the next day reports in the paper, with 98 percent of the precincts reporting, 51.1 percent of the 2.1 million votes were cast in favor of Amendment 2.  

by cyncooper on Wed Nov 15, 2006 at 11:09:33 AM EST
[ Parent ]





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